Box Stalker Is Giving Back – Pure Strength
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Box Stalker Is Giving Back

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We had our first big exposure to the CrossFit community at the South Georgia Throwdown Competion at World Camp Crossfit in Albany, GA.  It was a smashing success, but we do not plan to rest on our laurels.  We are donating some of the proceeds of sales from out opening event to benefit families with children afflicted with a rare genetic disorder called MECP2 Duplication Syndrome. We did not choose this charity randomly, as we at Box Stalker are very close to a special 10 year old boy named Ethan.  Ethan is nonverbal and both physically and developmentally challenged as a result of MECP2.  Despite his limitations, he still manages to do his own “mini-WODs” and cheer everyone on as they workout. The Crossfit gym is his absolute favorite place, and his presence there inspires all of us to work harder.   He is, without a doubt, the ultimate “Box Stalker.” As Ethan is doing as well as can be expected given his diagnosis (despite battling seizures and frequent infections), most children with this affliction are not so fortunate.  Many never see their tenth birthday, and most will die before their early twenties.  Because of the dismal prognosis and lack of research, much needs to be done to investigate this terrible disorder. In March, 2013 Baylor College of Medicine in Houston will be hosting a family information conference for this recently discovered life threatening disorder called MECP2 Duplication Syndrome.  Some four hundred children worldwide have been diagnosed, but because it is rare, little is known about the causes and treatments.  Most families are desperately trying to cope with the day to day issues of the syndrome, and this conference will bring together both medical and social support resources for these families.  Box Stalker, LLC will be one of the sponsors of this critically needed conference. Stay tuned to our facebook page and web site where we will announce a fundraising event in the spring of 2013.  Until then, keep Ethan and all the other children with MECP-2 in your thoughts and prayers. For more information about MECP-2 Duplication Syndrome and to find out how you can help, visit www.mecp2duplication.com

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